BOOK
Palliative and End-of-Life Care, An Issue of Nursing Clinics of North America, E-Book
James C. Pace | Dorothy Wholihan
(2016)
Additional Information
Book Details
Abstract
The Guest Editors have secured top experts in the area of palliative care to write current and clinically relevant articles. Articles in this issue are devoted to: Caring for LGBT Populations; Integrating Palliative Care into Primary Care; Pain Management in the Cognitively Impaired; Pain Management in the Client with Substance Use Disorder; Rituals at End of Life; Death Bed Phenomena; Family Care During End of Life; Palliative Wound Care; Pet-Assisted Therapy in Palliative Care; Palliative Sedation: State of the Science. Readers will come away with the updated information they need to provide state-of-the-art palliative care to their patients.
Table of Contents
| Section Title | Page | Action | Price |
|---|---|---|---|
| Front Cover | Cover | ||
| Palliative and End-of-Life Care\r | i | ||
| Copyright\r | ii | ||
| Contributors | iii | ||
| CONSULTING EDITOR | iii | ||
| EDITORS | iii | ||
| AUTHORS | iii | ||
| Contents | v | ||
| Foreword: The Difference Between Palliative Care and End-of-Life Care: More than Semantics\r | v | ||
| Preface: Palliative and End-of-Life Care: Compassion, Care, Commitment, Communication, Communion\r | v | ||
| Integrating Palliative Care into Primary Care\r | v | ||
| Animal-Assisted Therapy in Pediatric Palliative Care\r | v | ||
| Pain Assessment in Noncommunicative Adult Palliative Care Patients\r | v | ||
| Pain Management in the Individual with Serious Illness and Comorbid Substance Use Disorder\r | vi | ||
| A Review of Palliative Sedation\r | vi | ||
| Family Care During End-of-Life Vigils\r | vi | ||
| Rituals at End-of-life\r | vi | ||
| Seeing the Light: End-of-Life Experiences—Visions, Energy Surges, and Other Death Bed Phenomena\r | vi | ||
| Providing Palliative Care to LGBTQ Patients\r | vii | ||
| Palliative Wound Care for Malignant Fungating Wounds: Holistic Considerations at End-of-Life\r | vii | ||
| NURSING CLINICS OF\rNORTH AMERICA\r | viii | ||
| FORTHCOMING ISSUES | viii | ||
| December 2016 | viii | ||
| March 2017 | viii | ||
| June 2017 | viii | ||
| RECENT ISSUES | viii | ||
| June 2016 | viii | ||
| March 2016 | viii | ||
| December 2015 | viii | ||
| Foreword:\rThe Difference Between Palliative Care and End of Life Care: More than Semantics | ix | ||
| REFERENCE | x | ||
| Preface:\rPalliative and End-of-Life Care: Compassion, Care, Commitment, Communication, Communion | xi | ||
| Integrating Palliative Care into Primary Care | 367 | ||
| Key points | 367 | ||
| PRIMARY CARE PROVIDERS | 368 | ||
| BENEFITS OF PALLIATIVE CARE | 369 | ||
| IDENTIFYING THE NEED FOR PALLIATIVE CARE | 370 | ||
| GENERALIST OR SPECIALIST PALLIATIVE CARE | 370 | ||
| Generalist Palliative Care | 370 | ||
| Specialist Palliative Care | 371 | ||
| CONTRIBUTIONS OF THE PALLIATIVE CARE GENERALIST | 371 | ||
| Physical and Psychological Symptoms | 371 | ||
| Communication Skills | 371 | ||
| Community Resources | 372 | ||
| SPECIALTY LOCATIONS | 373 | ||
| Pediatrics | 373 | ||
| Home Care | 374 | ||
| Long-term Care | 374 | ||
| Hospice | 374 | ||
| REIMBURSEMENT | 375 | ||
| Chronic Care Management Services | 375 | ||
| SUMMARY | 375 | ||
| REFERENCES | 376 | ||
| Animal-Assisted Therapy in Pediatric Palliative Care | 381 | ||
| Key points | 381 | ||
| INTRODUCTION | 381 | ||
| BACKGROUND | 382 | ||
| Types of Animal-Assisted Therapy | 383 | ||
| Defining Animal-Assisted Therapy | 384 | ||
| Animal-Assisted Therapy with Adults | 384 | ||
| Animal-Assisted Therapy with Children | 385 | ||
| LIMITATIONS | 388 | ||
| Contraindications to Animal-Assisted Therapy | 389 | ||
| PRACTICE IMPLICATIONS | 389 | ||
| CURRENT AND FUTURE RESEARCH | 390 | ||
| REFERENCES | 391 | ||
| Pain Assessment in Noncommunicative Adult Palliative Care Patients | 397 | ||
| Key points | 397 | ||
| INTRODUCTION | 397 | ||
| REVIEW OF SELECTED PAIN ASSESSMENT TOOLS | 400 | ||
| Behavioral Pain Scale | 400 | ||
| Checklist of Nonverbal Pain Indicators | 409 | ||
| Critical Care Pain Observation Tool | 418 | ||
| Face, Legs, Activity, Cry, and Consolability Pain Tool | 419 | ||
| Multidimensional Observational Pain Assessment Tool | 419 | ||
| Nociceptive Coma Scale | 420 | ||
| Nonverbal Pain Scale | 421 | ||
| KEY FACTORS IN SELECTING PAIN ASSESSMENT TOOLS | 422 | ||
| CASE STUDIES | 426 | ||
| SUMMARY | 427 | ||
| ACKNOWLEDGMENTS | 427 | ||
| REFERENCES | 428 | ||
| Pain Management in the Individual with Serious Illness and Comorbid Substance Use Disorder | 433 | ||
| Key points | 433 | ||
| INTRODUCTION | 434 | ||
| PREVALENCE OF SUBSTANCE USE DISORDER | 434 | ||
| SCOPE OF PROBLEM IN HOSPICE AND PALLIATIVE CARE | 434 | ||
| CLARIFYING TERMINOLOGY | 435 | ||
| SUBSTANCE USE DISORDER ON A CONTINUUM | 436 | ||
| UNIVERSAL PRECAUTIONS | 437 | ||
| PAIN ASSESSMENT | 437 | ||
| MANAGEMENT STRATEGIES | 439 | ||
| Informed Consent and Treatment Agreements | 439 | ||
| Urine Drug Testing | 439 | ||
| Prescription Monitoring Programs and Electronic Prescribing | 441 | ||
| Opioid Selection | 441 | ||
| DESIGNING A SAFE TREATMENT PLAN | 442 | ||
| SPECIAL CONSIDERATIONS IN THE ACUTE CARE OR INPATIENT HOSPICE SETTING | 443 | ||
| SUMMARY | 443 | ||
| REFERENCES | 444 | ||
| A Review of Palliative Sedation | 449 | ||
| Key points | 449 | ||
| INTRODUCTION | 449 | ||
| CASE STUDY | 449 | ||
| TERMINOLOGY, INDICATIONS, AND TYPES OF PALLIATIVE SEDATION | 450 | ||
| Evolving Definitions | 450 | ||
| Indications for the Use of Palliative Sedation | 450 | ||
| Types of Sedation to Achieve Palliative Sedation | 451 | ||
| TREATMENT OPTIONS | 452 | ||
| Pharmacologic and Nonpharmacologic | 452 | ||
| Treatment Guidelines and Position Statements | 452 | ||
| ETHICAL CONSIDERATIONS | 453 | ||
| Proportionality, Euthanasia, and the Principle of Double Effect | 453 | ||
| When is a Symptom Considered to be Refractory? | 453 | ||
| Informed Consent Before Initiation | 454 | ||
| Nonphysiologic Symptoms/Existential Distress: to Use or Not to Use Palliative Sedation? | 454 | ||
| NURSING CARE | 454 | ||
| Before Initiating Palliative Sedation | 454 | ||
| During the Process of Palliative Sedation | 455 | ||
| After Palliative Sedation | 456 | ||
| SUMMARY | 456 | ||
| REFERENCES | 456 | ||
| Family Care During End-of-Life Vigils | 459 | ||
| Key points | 459 | ||
| INTRODUCTION | 459 | ||
| BACKGROUND | 459 | ||
| SIGNIFICANCE TO NURSING | 460 | ||
| LITERATURE REVIEW | 460 | ||
| CONCEPTUAL DEFINITIONS | 460 | ||
| VIGIL AS TRANSITION | 461 | ||
| VIGIL: A STATE OF AWARENESS | 461 | ||
| VIGIL AS PSYCHOLOGICAL CONSTRUCT | 462 | ||
| VIGIL AS A PSYCHOLOGICAL PROCESS | 462 | ||
| VIGIL AS ANTICIPATORY MOURNING | 462 | ||
| VIGIL: THE ACT OF VIGILANCE | 463 | ||
| VIGIL AS CARING | 463 | ||
| VIGIL AS SOCIAL PROCESS | 464 | ||
| VIGIL AS RITUAL | 464 | ||
| SUMMATION OF RESEARCH | 465 | ||
| NURSING IMPLICATIONS: CARE OF THE VIGILING FAMILY | 465 | ||
| DISCUSSION | 467 | ||
| ACKNOWLEDGMENTS | 467 | ||
| REFERENCES | 467 | ||
| Rituals at End-of-Life | 471 | ||
| Key points | 471 | ||
| BACKGROUND: RITUALS AT END OF LIFE REFLECT, APPRECIATE, AND HONOR LIFE | 471 | ||
| THE SPIRITUAL AND RELIGIOUS IMPORTANCE OF RITUAL(S) | 472 | ||
| Spirituality | 472 | ||
| Religion | 472 | ||
| MEANINGFUL RITUALS AT MISCARRIAGE, STILLBIRTH, AND NEWBORN DEATH | 473 | ||
| THE MALE PERSPECTIVE OF PERINATAL LOSS | 474 | ||
| RITUALS IN THE CRITICAL CARE SETTING | 474 | ||
| RITUALS IN THE EMERGENCY ROOM | 475 | ||
| RITUALS ASSOCIATED WITH THE UNFOUND (THE MISSING) | 476 | ||
| HONORING CEREMONIES | 477 | ||
| LEGACY MAKING: PRESERVING MEMORIES | 478 | ||
| Postmortem Photography | 478 | ||
| Molds, Inks, Castings, and Material Objects (the Importance of a Memento) | 478 | ||
| Social Media | 478 | ||
| MAINTAINING (CONTINUING) BONDS: POSTDEATH ENCOUNTERS | 478 | ||
| RITUAL AT END OF LIFE AS SACRAMENT | 479 | ||
| Baptism | 479 | ||
| Marriage | 479 | ||
| Anointing with Oil | 480 | ||
| RITUAL DRAMA: MUSIC THERAPY AT THE BEDSIDE | 480 | ||
| COLLECTIVE RESPONSES TO DEATH | 480 | ||
| VARIOUS OTHER RITUALS | 481 | ||
| END-OF-LIFE RITUALS AND THE NURSE | 482 | ||
| SUMMARY | 483 | ||
| REFERENCES | 484 | ||
| Appendix 1. APPENDIX 1 GIVING THANKS FOR THE UNEXPECTED LOSS OF A LIFE | 486 | ||
| A closing ritual at the bedside of the deceased | 487 | ||
| Appendix 2. APPENDIX 2 IN THE CASE OF THE NEED FOR EMERGENCY BAPTISM | 487 | ||
| Supplies needed | 487 | ||
| A formula for emergency baptism | 487 | ||
| Seeing the Light | 489 | ||
| Key points | 489 | ||
| INTRODUCTION AND HISTORY | 490 | ||
| BARRIERS TO RECOGNITION OF THE CLINICAL SIGNIFICANCE OF END-OF-LIFE EXPERIENCES | 490 | ||
| REVIEW OF THE LITERATURE | 490 | ||
| INCIDENCE | 491 | ||
| DEFINING DEATH BED PHENOMENA: VISIONS | 493 | ||
| DEFINING DEATH BED PHENOMENA: ENERGY SURGES IN THE LAST HOURS OF LIFE | 494 | ||
| DEATH BED PHENOMENA: MYSTICAL EXPERIENCES OR MEDICAL DELIRIUM? | 494 | ||
| IMPLICATIONS FOR PRACTICE | 495 | ||
| Clinical Assessment of Death Bed Phenomena | 495 | ||
| Open Communication | 495 | ||
| CARE OF FAMILY AND LOVED ONES | 495 | ||
| PATIENTS | 496 | ||
| NEED FOR EDUCATION | 498 | ||
| SUMMARY | 498 | ||
| ACKNOWLEDGMENTS | 498 | ||
| REFERENCES | 498 | ||
| Providing Palliative Care to LGBTQ Patients | 501 | ||
| Key points | 501 | ||
| UNIQUE HEALTH ISSUES | 502 | ||
| Stigmatization | 503 | ||
| Social Supports | 503 | ||
| Advance Care Planning | 503 | ||
| Concerns About Disclosure | 504 | ||
| SPECIAL NEEDS OF THE TRANSGENDER POPULATION | 504 | ||
| NURSING IMPLICATIONS | 504 | ||
| Stigmatization | 504 | ||
| Disclosure | 505 | ||
| Social Isolation and Limited Caregiver Availability | 505 | ||
| Transgender People at High Risk | 507 | ||
| LGBTQ Elders at High Risk | 508 | ||
| Care of “Families of Choice” | 508 | ||
| IMPLICATIONS FOR NURSING EDUCATION | 509 | ||
| IMPLICATIONS FOR NURSING POLICY | 509 | ||
| IMPLICATIONS FOR NURSING RESEARCH | 509 | ||
| SUMMARY | 509 | ||
| REFERENCES | 510 | ||
| Palliative Wound Care for Malignant Fungating Wounds | 513 | ||
| Key points | 513 | ||
| INTRODUCTION: THE MAGNITUDE OF SUFFERING | 513 | ||
| ROLE OF THE HOSPICE AND PALLIATIVE CARE WOUND, OSTOMY, AND CONTINENCE NURSE | 516 | ||
| PSYCHOSOCIAL ASPECTS OF CARE | 517 | ||
| PSYCHOSOCIAL ASPECTS OF CARE: COMPLEMENTARY ALTERNATIVE MEDICINE | 519 | ||
| SPIRITUAL ASPECTS OF CARE | 519 | ||
| PHYSICAL ASPECTS OF CARE: PAIN | 520 | ||
| PHYSICAL ASPECTS OF CARE: ODOR AND EXUDATES | 521 | ||
| PHYSICAL ASPECTS OF CARE: MOISTURE-ASSOCIATED SKIN DAMAGE AND PRURITUS | 522 | ||
| PHYSICAL ASPECTS OF CARE: BLEEDING | 526 | ||
| SUMMARY | 528 | ||
| REFERENCES | 529 | ||
| Index | 533 |