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Quality of Life Issues in Dermatology, An Issue of Dermatologic Clinics - E-Book

Quality of Life Issues in Dermatology, An Issue of Dermatologic Clinics - E-Book

Suephy C. Chen

(2012)

Additional Information

Book Details

Abstract

This issue defines the concepts and outlines the concerns surrounding quality of life issues in dermatology.  Articles review the concepts of general versus disease-specific measures and include Patient Preference QOL Measures, and Review of Children and Family QOL Measures.  Disease specific QOL topics are also included, such as Melanoma, Acne, and Eczema.

Table of Contents

Section Title Page Action Price
Front Cover Cover
Dermatologic Clinics i
Copyright Page ii
Table of Contents vii
Contributors iii
Dermatologic Clinics xi
Preface xiii
Chapter 1. Health-Related Quality of Life in Dermatology: Introduction and Overview 205
RECOMMENDATIONS FROM THE INTERNATIONAL DERMATOEPIDEMIOLOGY ASSOCIATION MEETING 205
OVERVIEW OF COMPENDIUM 207
SUMMARY 208
ACKNOWLEDGMENTS 208
REFERENCES 208
Chapter 2. Overview of Health Status Quality-of-Life Measures 209
CONSIDERATIONS IN SELECTING A HEALTH STATUS QOL INSTRUMENT 210
GENERIC HEALTH STATUS QOL MEASURES 211
DERMATOLOGY-SPECIFIC INSTRUMENTS 213
CONDITION-SPECIFIC MEASURES 214
USES FOR HEALTH STATUS QOL MEASURES IN DERMATOLOGY 217
SUMMARY 218
REFERENCES 218
Chapter 3. Preference-Based Measures in Dermatology: An Overview of Utilities and Willingness to Pay 223
UTILITIES: DEFINITIONS AND METHODS 223
WILLINGNESS TO PAY: DEFINITIONS AND METHODS 225
APPLICATIONS OF UTILITIES AND WTP 225
UTILITIES IN DERMATOLOGY 226
WTP IN DERMATOLOGY 226
DIFFERENCES BETWEEN UTILITIES AND WTP 227
WTP AND TIME TRADE-OFF UTILITY CORRELATION IN DERMATOLOGY 228
SUMMARY 228
REFERENCES 229
Chapter 4. The Skindex Instruments to Measure the Effects of Skin Disease on Quality of Life 231
DEVELOPMENT OF SKINDEX 231
CHOOSING BETWEEN SKINDEX-29 AND SKINDEX-16 233
INTERPRETATION OF SCORES 233
USING SKINDEX IN RESEARCH STUDIES AND IN CLINIC 234
FUTURE DIRECTIONS 235
SUMMARY 235
REFERENCES 235
Chapter 5. A Review of the Use of the Dermatology Life Quality Index as a Criterion in Clinical Guidelines and Health Technology Assessments in Psoriasis and Chronic Hand Eczema 237
LITERATURE SEARCH STRATEGY 238
CLINICAL USE OF THE DLQI IN PSORIASIS 238
CLINICAL USE OF THE DLQI IN CHE 240
HEALTH ECONOMIC USE OF DLQI IN HEALTH TECHNOLOGY APPRAISAL OF NEW DERMATOLOGY TREATMENTS 240
DISCUSSION 241
SUMMARY 242
ACKNOWLEDGMENTS 242
REFERENCES 242
Chapter 6. Health-Related Quality of Life in Patients with Melanoma: Overview of Instruments and Outcomes 245
QOL INSTRUMENTS 246
METHODS 248
MELANOMA-SPECIFIC FINDINGS 248
SUMMARY 250
ACKNOWLEDGMENTS 251
REFERENCES 251
Chapter 7. Quality-of-Life Issuesin Vitiligo 255
EPIDEMIOLOGY 255
SKIN TYPE 255
AGE 256
MARITAL STATUS 256
LOCATION OF VITILIGO: EXPOSED VERSUS UNEXPOSED 257
GENDER 257
CURRENT TOOLS FOR MEASUREMENT OF QoL IN VITILIGO 258
IMPACT ON HRQL AFTER TREATMENT 264
NONMEDICAL INTERVENTIONS 265
COSMETIC CAMOUFLAGE 265
SURGICAL INTERVENTIONS 265
SUMMARY 266
REFERENCES 266
Chapter 8. Melasma Quality of Life Measures 269
MELASMA 269
QOL INSTRUMENTS 270
MELASQOL 270
MELASMA IN LATINO MEN 272
SPANISH MELASQOL 273
TRANSLATION ISSUES 274
BRAZILIAN PORTUGUESE MELASQOL 274
FRENCH MELASQOL 276
TURKISH MELASQOL 277
SUMMARY 279
REFERENCES 279
Chapter 9. Quality-of-LifeInstruments: Evaluation of the Impact of Psoriasison Patients 281
DEFINITION OF QoL 282
IMPORTANCE OF QoL EVALUATION 282
HEALTH-RELATED QoL INSTRUMENTS 282
QoL INSTRUMENTS FOR PSORIASIS 282
GENERIC QoL INSTRUMENTS 283
DERMATOLOGY-SPECIFIC QoL INSTRUMENTS 284
DERMATOLOGY-SPECIFIC QoL INSTRUMENTS: CHILDREN 285
PSORIASIS-SPECIFIC QoL INSTRUMENTS 286
SUMMARY 289
REFERENCES 289
Chapter 10. Quality of Life Measures for Acne Patients 293
METHODS 294
RESULTS 294
DISCUSSION 296
SUMMARY 298
REFERENCES 299
Chapter 11. Quality-of-Life Measurement in Blistering Diseases 301
INHERITED BLISTERING DISEASES 302
AUTOIMMUNE BLISTERING DISEASE 304
SUMMARY 306
ACKNOWLEDGMENTS 306
REFERENCES 306
Chapter 12. Pruritus 309
METHODS 310
RESULTS 310
SUMMARY 320
REFERENCES 320
Chapter 13. Health-Related Quality-of-Life Assessment in Dermatologic Practice: Relevance and Application 323
HRQoL ASSESSMENT IN DERMATOLOGY: WHY? 324
HRQoL ASSESSMENT IN DERMATOLOGY: HOW? 326
SUMMARY 330
ACKNOWLEDGMENTS 331
REFERENCES 331
Chapter 14. Clinical Meaning in Skin-specific Quality of Life Instruments: A Comparison of the Dermatology Life Quality Index and Skindex Banding Systems 333
DERMATOLOGY LIFE QUALITY INDEX 334
SKINDEX 334
CLINICAL MEANING ASSIGNED TO SCORE 335
SKINDEX VERSUS DLQI 336
REFERENCES 340
Chapter 15. Future Directions in Dermatology Qualityof Life Measures 343
CLINICAL SIGNIFICANCE OF QoL MEASURES 344
INTERPRETING RESULTS FROMOUTCOMES DATA 344
CHOOSING MEASURES: GUIDELINES WHENDISEASE-SPECIFIC MEASURES DO NOT EXIST 345
PREFERENCE-BASED MEASURES 346
FUTURE DIRECTIONS FOR OUTCOMES RESEARCH 347
REFERENCES 347
Index 349