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Learning Disabilities - E-Book

Learning Disabilities - E-Book

Helen Atherton | Debbie Crickmore | Jonathan Evans | Eamon Shanley

(2011)

Additional Information

Book Details

Abstract

Learning Disabilities: Toward Inclusion (formerly edited by Bob Gates) is one of the leading textbooks in this field. It offers real ways to improve quality of experience for people with learning disabilities in all areas of life.

This new edition brings together a comprehensive and coherent collection of material from eminent authors with a wealth of professional backgrounds and roles. Its contemporary focus reflects practice developments including the impact of changing policy and legislation on the nature and configuration of services.

The leading textbook for carers of people with learning disabilities

A comprehensive overview of the field of learning disabilities care

Well-written accessible content

Activities, case studies, diagrams and further resources including useful web links

  • the embedding of key themes across chapters to draw diverse material into an integrated whole. These are: person-centredness, values, the reality of practice, the range of ability, the range of services and national and international perspectives.

  • chapters on advocacy, personal narratives and life story, inclusive research, risk, safeguarding, sensory awareness, epilepsy and end-of-life care

  • online case studies and activities with critical-thinking questions and ‘hot links’ to web resources to extend knowledge and understanding thereby facilitating learning

  • a fully searchable, customisable electronic version of the text to enable easy access and quick reference

Table of Contents

Section Title Page Action Price
Front Cover Cover
Learning Disabilities Toward Inclusion iii
Copyright iv
Contents v
Contributors vii
Foreword by Jonathan Evans ix
Foreword by Eamon Shanley x
Preface xi
Section 1: Living with learning disabilities 1
Chapter 1: The social construction of learning disability 3
Key issues 3
Introduction 3
A social constructionist perspective 4
Ways of knowing about learning disability and the consequences of this knowledge for people with learning disabilities 11
Conclusions 15
Section 2: Implementing values-based support 89
Chapter 6: Let me speak - facilitating communication 91
Key issues 91
Introduction 91
What is communication? 92
Challenges in everyday communication 95
Adapting our communication 97
Profiling an individual´s communication strengths and support needs 105
Inclusive communication 106
A responsive environment 106
Total Communication 107
Conclusion 107
References 108
Further reading 110
Useful addresses 111
Chapter 7: Advocacy 113
Key issues 113
Introduction 113
Policy and legislative context of advocacy 114
Self-advocacy 116
Citizen advocacy 15
Other types of advocacy 26
The changing ethos and practice of services 28
Advocacy skills for professionals 28
Section 3: Overcoming challenges to good health 215
Chapter 13: Enabling good health 217
Key issues 217
Introduction 217
Health and difference: discrimination and prejudice 218
Enablement, mediation and advocacy 220
The social determinants of health 222
Interventions that improve health 223
Monitoring and evaluating care at national and local levels 231
Teaching and training health care workers 233
New roles for learning disabilities practitioners 233
Conclusion 233
References 234
Further reading 236
Useful addresses 236
Chapter 14: Physical health 239
Key issues 239
Introduction 239
Physical disabilities: an overview 240
Person-centred assessment and interventions 240
Disorders of movement 241
Pain assessment and management 26
Nutrition and hydration 27
Bladder and bowel function 29
Conclusion 256
Section 4: Facilitating transition across the lifespan 377
Chapter 21: Working with people to make choices 379
Key issues 379
Introduction 379
Barriers to choice 380
Our thinking about care 380
Understanding choice 382
The professional and the citizen 384
Conclusion 393
References 394
Further reading 394
Useful addresses 394
Chapter 22: Working with families 395
Key issues 395
Acknowledgement 395
Introduction 395
Who is a family carer? 396
Policies, strategies and legislation 396
Developing understanding of the context of caring 398
Identifying issues in respect of approaches and support from services 399
Positive approaches to supporting family carers 401
Conclusion 408
References 409
Further reading 411
Useful addresses 412
Useful websites 412
Chapter 23: Childhood 413
Key issues 413
Introduction 413
Defining child 414
The developing child 415
Aiming higher for disabled children: better support for families 421
Family experience 421
Transition through childhood 424
Safeguarding children in need 424
Conclusion 426
References 426
Further reading 429
Useful addresses 429
Chapter 24: Leisure and friendships 431
Key issues 431
Introduction 431
The social status of people with learning disabilities 432
Promoting social inclusion through leisure 435
Creating active and social lifestyles 439
Opportunities and risks 444
Conclusion - re-creation of social and leisure opportunities 445
References 445
Further reading 447
Useful addresses 447
Chapter 25: Education for children and young people with learning disabilities 449
Key issues 449
Introduction 449
A historical overview 450
The Warnock Report and beyond 451
SEN Code of Practice 452
Transition 456
Working with parents and families 457
Inclusion 458
Every Child Matters and Every Disabled Child Matters 458
The curriculum 459
Developing the pupil voice 460
Life-long learning 462
Issues for staff in school 463
Multi-agency working 464
The global dimension and the international perspective 464
Conclusion 465
References 465
Further reading 466
Useful addresses 466
Chapter 26: Employment 467
Key issues 467
Introduction 467
Definition of employment 468
Policy context 469
Key concepts 471
Meaning of employment 472
People with learning disabilities want real jobs 473
Potential barriers to employment 473
'Supported employment' approach 476
Realities of practice 478
Key principles for best practice 480
Conclusion 480
Dedication 480
References 480
Further reading 483
Useful addresses 483
Chapter 27: A place to live 485
Key Issues 485
Introduction 485
Housing: history, policy and reality 486
Design for living 489
Housing options 492
Housing rights 497
Common issues 498
Conclusion 499
References 500
Further reading 500
Useful addresses 501
Chapter 28: Sexual and personal relationships 503
Key issues 503
Introduction 503
The story so far 504
All is well? 507
The need for a new framework 509
Conclusion 30
References 15
Further reading and resources 16
Further reading 16
Useful addresses 16
Chapter 2: Causes of learning disability 17
Genetics and inheritance 19
Chromosomal abnormalities 20
Gene abnormalities 20
Genetic counselling 24
Environmental and genetic causes of learning disability by time 25
Conclusion 32
References 33
Further reading 34
Useful addresses 34
Chapter 3: Eugenics: the creation andmaintenance of difference 35
Key issues 35
Introduction 35
What is eugenics? 36
The problem of the feeble-minded 37
Eugenics in practice 40
Role of professional groups 46
Eugenics today 48
The importance of acknowledging and accepting the past 49
Conclusion 50
References 50
Further reading 53
Useful addresses 53
Chapter 4: Values-based support 55
Key issues 55
Introduction 55
What are values? 56
Human dignity - the heart of human flourishing 57
Introducing Mary 58
Person-centredness and citizenship 60
Partnership 65
From normalisation to inclusion 67
Conclusion 71
References 71
Further reading 73
Useful addresses 73
Chapter 5: Ethical issues 75
Key Issues 75
Introduction 75
The nature of ethics 76
Ethical perspectives 77
A principles approach to ethics 79
Working through ethical dilemmas 84
Conclusion 87
References 87
Further reading 88
Useful addresses 88
Chapter 8: Personal narrative and life story 131
Key issues 131
Introduction 131
What are oral histories, narratives and life stories? 132
Why is this approach gaining popularity? 134
What about life stories? 134
Building and exploring the context for narratives and oral histories 134
Gathering a narrative or oral history 135
Life story work 138
Ethical considerations 139
Practical examples 140
Conclusion 143
References 143
Further reading 144
Useful addresses 144
Chapter 9: Person-centred strategies for planning 145
Key issues 145
Introduction 145
Person-centred values 146
Person-centred planning 147
Facilitating the person-centred planning process 149
To have a dream 152
Person-centred risk 153
Developing the facilitator role 155
Person-centred thinking 156
Person-centred planning coordination 157
Conclusion 158
References 158
Further reading 159
Useful addresses 159
Chapter 10: Inclusive research... 161
Key issues 161
Introduction 161
Nature of emancipatory research 162
Research makes a difference, but on whose terms? 163
Deciding what research should be carried out 163
Planning the context and control of the research 165
Supporting inclusive research 166
Learning research skills 169
Collecting data 170
Owning the research: saying what it all means 171
Dissemination 173
Conclusion 175
References 175
Further reading 177
Useful addresses 177
Chapter 11: Positive risk taking 179
Key issues 179
Introduction 180
The nature of positive risk taking 180
Defining risk 180
Risk: managing uncertainty and allocating blame 181
The importance of positive risk taking 183
Impediments to positive risk taking and ways of overcoming them 186
Methods of facilitating spontaneity and informality in risk taking: advocacy, trust and communication 189
Conclusion 192
References 192
Further reading 194
Useful addresses 194
Chapter 12: Safeguarding against abuse and harm 197
Key issues 197
Introduction 197
Background and historical overview 198
Policy and legislation 199
Definitions and categories of abuse 200
Settings of abuse 28
Perpetrators of abuse 28
The impact of abuse 28
Why are people with learning disabilities abused? 28
Responding to abuse and harm 30
Safeguarding - towards inclusion 31
Chapter 15: Sensory awareness 259
Key issues 259
Introduction 259
Dual/multi-sensory impairment 260
Sight 261
Hearing 267
Sense of smell 270
Sense of taste 271
Sense of touch 272
Combining awareness of the senses in your work 273
Conclusion 273
References 274
Further reading 275
Useful addresses 275
Chapter 16: Epilepsy 277
Key issues 277
Introduction 278
Causation and classification 278
Seizure types 279
Assessment and diagnostic process 282
Treatment and management 284
Epilepsy and the individual 289
Epilepsy and mental health 290
Meeting the health needs of those with epilepsy 291
Conclusion 294
References 296
Further reading 297
Useful addresses 297
Chapter 17: Mental health problems in people with learning disabilities 299
Key issues 299
Introduction 300
What do we mean by the term 'mental health problems'? 301
Types of mental health problems 301
Prevalence of mental health problems 302
Recognising the signs/symptoms of mental health 303
Using a bio-psycho-social model to understand mental health 304
Assessing mental health problems 28
Interventions for mental health problems 30
Health promotion 31
Interprofessional working 31
Conclusion 31
Training materials for staff 34
Chapter 18: Challenging behaviour 319
Key issues 319
Introduction 319
Definitions and associated issues 319
Prevalence and demography 321
Causation 322
Assessment of challenging behaviour 327
Interventions 329
Working within an ethical and legal framework 332
Conclusion 334
References 334
Further reading 337
Useful addresses 337
Chapter 19: Working with offenders 339
Key Issues 339
Introduction 340
Prevalence and experience of people with learning disabilities in the criminal justice system 340
Legal and policy framework 341
Diversion away from the criminal justice system 342
Service provision 342
Criminal justice liaison and diversion schemes 343
Contact with the police 344
The criminal courts 348
The National Offender Management Service (NOMS) 350
The Prison Service 351
Conclusion 354
References 354
Further reading 356
Useful addresses 356
Chapter 20: Autism spectrum conditions 357
Key issues 357
Introduction 357
What defines autism? 358
Life with autism spectrum condition 362
How is autism spectrum condition identified? 363
What causes autism? 363
Interventions 365
Conclusion 374
References 374
Useful addresses 376
Resources 34
Chapter 29: Growing older: meeting the needs of people with learning disabilities 519
Key issues 519
Introduction 519
Understanding the ageing process among people with learning disabilities 520
Physical health of older people with learning disabilities 521
Mental health of older people with learning disabilities 521
Healthy ageing 523
Facilitating healthy ageing among older people with learning disabilities 524
Quality of life 526
Older carers of people with learning disabilities 526
Services for older people with learning disabilities 527
Retirement 529
Role of professionals in meeting the needs of older people with learning disabilities 529
Conclusion 530
References 531
Further reading 534
Useful addresses 534
Chapter 30: End of life 535
Key Issues 535
Acknowledgement 535
Introduction 535
Death as loss 536
End of life care 537
Living with loss 540
Bereavement and people with a learning disability 543
Conclusion and recommendations 548
References 549
Further reading and useful addresses 551
Index 553