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Can I tell you about Nystagmus?

Can I tell you about Nystagmus?

Nadine Neckles | Vikas Upadhyay

(2019)

Additional Information

Book Details

Abstract

In this friendly guide, a girl called Amber explains all about her 'dancing eyes,' or nystagmus. Amber explains how children with nystagmus might need to read, learn or play differently, and what their families, school and friends can do to help. She invites readers to learn the causes and symptoms, to help others understand the condition and help increase the self-esteem and confidence of those who have it.

This accessible guide for children aged 7+ is an excellent starting point for parents, teachers and other professionals working with children with nystagmus. It includes a practical checklist of easy adaptations to make school or home environments easier and more enjoyable for children with nystagmus, as well as a helpful list of recommended resources for additional support.


Nadine Neckles is a special needs blogger who has written for leading disability charities including Carers UK, Caring in the Chaos and Firefly. Nadine is a full-time carer to her young daughter who has nystagmus and Chromosome 18q-, a rare genetic condition.

Table of Contents

Section Title Page Action Price
Can I tell you about Nystagmus? 3
Contents 5
Acknowledgements 7
Introduction for Parents, Carers and Professionals 8
Introduction to Nystagmus 10
Introduction to Amber who has Nystagmus 14
Diagnosis 18
Wearing Glasses 23
School and Nystagmus 28
Making Friends and Avoiding Bullying 37
Playing 41
Sensory Issues 48
Things that Affect my Nystagmus 53
When I Grow Up – Living Successfully with Nystagmus 55
Information for Adults 59
Associated Conditions 61
Useful Checklist for Teachers, Parents and Professionals 64
Glossary of Terms 73
Further Reading, Resources, Websites and Organisations 77
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