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Will I Still Be Me?

Will I Still Be Me?

Christine Bryden

(2018)

Abstract

What does a dementia diagnosis mean for an individual's sense of self? Christine Bryden shares her insider view on living with dementia and explains how a continuing sense of self is possible after diagnosis and as the condition develops.

Encouraging a deeper understanding of how individuals live meaningfully with dementia, the book challenges the dominant story of people with dementia 'fading away' to eventually become an 'empty shell'. It explores what it means to be an embodied self with feelings and emotions, how individuals can relate to others despite cognitive changes and challenges to communications, and what this means for the inclusion of people with dementia in society.


Christine Bryden was diagnosed with dementia in 1995 and since then has become the foremost dementia advocate, speaking at national and international conferences and campaigning for self-advocacy. She lives in Brisbane, Australia.

Table of Contents

Section Title Page Action Price
WILL I STILL BE ME? 5
Contents 7
Acknowledgements 9
Preface 11
Chapter 1 - Am I Losing My Self? 15
Chapter 2 - Re-interpreted and Re-packaged at Diagnosis! 19
Chapter 3 - How Can I Write a Book? 27
How can I overcome cognitive difficulties? 31
How can I find meaning? 34
Why the idea of loss of self impacted negatively on me 37
Chapter 4 - Challenging Loss of Self in Dementia 43
Chapter 5 - ‘I Who Know That I Exist Inquire Into What I Am’ 51
Chapter 6 - Embodied Self 59
Scientific views of embodiment 63
Scientific views of recall dysfunction 66
Philosophical views of embodiment 68
Retention of embodied virtues 71
Chapter 7 - Relational self 75
Relating to what gives us a sense of meaning 78
Relating from birth 81
Capacities for relationship 84
Chapter 8 - Narrative self 95
Recall and narrative 97
Language and narrative 99
Present moment and narrative 100
Chapter 9 - Upheld by Others in the Fullness of Our Identity 103
We need to be supported in an inclusive community of equals 106
How can the community support and include us? 109
Chapter 10 - Who Am I Now If I No Longer Have Dementia? 115
Conclusion 119
References 131
Index 139
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