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Younger People with Dementia

Younger People with Dementia

Sylvia Cox | John Keady

(1998)

Abstract

Despite the growth of interest in dementia and dementia care over the past two decades, services and interventions for younger people with dementia and their carers remain, on the whole, fragmented and poorly developed. The focus of social, psychological and biomedical research has been almost exclusively on older people and their carers.

The first book to address the subject in its own right, Younger People with Dementia addresses good practice and stimulates an agenda for change. The contributors explore the implications for younger people with dementia and their families at personal, planning and service-development levels. Arguing that information from the wide range of existing practice and clinical knowledge can be shared and built upon, the contributors call for a collaborative, interprofessional and multi-disciplinary approach to all stages of the provision of services.


This book is not one to be just read. Because of its academic nature it is to be studied, discussed with colleagues and used as a reference tool. It embraces medical, sociological and psychological approaches in addressing and understanding the particular needs of persons with younger onset dementia. "Younger" is defined as being anyone under the age of 65, and particularly those in their third, fourth, fifth and sixth decade. In addition to scholarly essays, there are also many accounts from people with dementia as well as their caregivers…What we especially like about this book is the collaborative effort of various disciplines from several countries. As it is not limited to national boundaries, it gives a window into writings and practices from around the world…The result is an impressive and informative book from which all of us working in the Alzeimer's community can benefit. Sylvia Cox and John Keady are to be commended for taking on the task of editing this excellent book…This is a timely book that argues that "information from the wide range of existing practice and clinical knowledge can be shared and built upon; the contributors call for a collaborative, interprofessional and multidisciplinary approach to all stages of the provision of services." This they have accomplished with their contributions to this book.
Early Alzheimer's
One of the joys of book reviewing is that occasionally one is offered a book that gets everything right. Younger People with Dementia is such a book. The subject matter is of increasing concern and this treatment is timely. The book is well produced by a specialist publisher. Its contributors contribute readable English, with a notable absence of jargon. Both editors have written widely on the subject themselves and have chosen and ordered the contributors with great care. An impressive bibliography is also included.
Community Practitioner
This is the first book to address the subject in its own right. The contributors explore the implications for younger people and their families at personal, planning and service development levels. The contents are very necessary reading for all those concerned in dementia care and raise important interprofessional issues…The book is very well referenced, giving many suggestions for further reading on particular subjects. The style is clear and readable throughout. In my own opinion the book is essential reading for all concerned with providing care for younger people with dementia.
Journal of Interprofessional Care
This volume of writing is extremely timely and benefits from the substantial dementia care practice, research and service evaluation experience of the editors, Sylvia Cox and John Keady. Recommended reading for service planners everywhere.
Signpost Reviews

Table of Contents

Section Title Page Action Price
COVER Cover
Younger People with Dementia:\rPlanning, Practice and Development 3
Contents 5
ACKNOWLEDGEMENTS\r 8
Foreword 9
Introduction 11
PART ONE: SETTING THE\rSCENCE 15
1. Assessment and Service Responses\rfor Younger People with Dementia:\rA Medical Overview 17
2.\rEpidemiological Issues\rand Younger People with Dementia 37
3. Needs Assessment:\rIndividual and Strategic Care Planning 52
4. Opportunities and Threats:\rMultiagency Perspectives\rand Person-Centred Planning 69
PART TWO: SPECIFIC\rCONSIDERATIONS 89
5.\rHIV-Related Brain Impairment 91
6.\rHuntington’s Disease 107
7.\rLearning Disabilities and Dementia 121
8.\rAlcohol-Related Brain Impairment 135
PART THREE: DEVELOPING AN INDIVIDUAL UNDERSTANDING\r 151
9. ‘Dark Head Amongst the Grey’:\rExperiencing the Worlds\rof Younger Persons with Dementia 153
10.\rNegotiating Caregiving\rand Employment 173
11. Young Carers:\rIndividual Circumstances and Practice\rConsideration in Dementia Caregiving 196
12. Family Caregiving\rand Younger People with Dementia:\rDynamics, Experiences and Service Expectations 203
13.\rDesigning for the Needs of Younger\rPeople with Dementia 223
PART FOUR: PRACTICE DEVELOPMENTS\r 243
14. Younger People with Dementia:\rPsychosocial Interventions 245
15.\rSupport Groups for People with Early Stage Alzheimer’s Disease 261
16. Training and Younger People\rwith Dementia:\rA Shared Learning Perspective 282
17. Changing the Mind-Set:\rDeveloping an Agenda for Change 292
THE CONTRIBUTORS\r 305
REFERENCES\r 307
SUBJECT INDEX\r 320
AUTHOR INDEX 326