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Understanding Behaviour in Dementia that Challenges, Second Edition

Understanding Behaviour in Dementia that Challenges, Second Edition

Ian Andrew James | Louisa Jackman | Katharina Reichelt | Alan Howarth | Matt Crooks | Deborah Sells | Jennifer Loan | Roberta Caiazza | Julian Hughes

(2017)

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Abstract

The innovative Newcastle Challenging Behaviour Model for dementia care has recently been updated, leading to new advances in the field. This revised second edition guide to assessment and treatment of behaviours that challenge associated with dementia includes these latest developments along with new sections on what have traditionally been considered controversial topics.

The new chapters cover issues including:
- End of life care
- Use of therapeutic dolls
- Lies and deception
- Physical restraint during personal care
- Racism towards care staff

With a particular emphasis on non-pharmacological approaches, this book details the range of behaviours common in individuals with dementia, along with the most effective assessment and treatment techniques for health care professionals.


Ian Andrew James is Challenging Behaviour Trust Lead for Older People and Consultant Clinical Psychologist in Northumberland Tyne and Wear NHS Trust. Ian is also an Honorary Professor at Bradford University.

Dr Louisa Jackman worked in Older People's Psychological Services for 13 years until recently moving to work in neuropsychology. She now works with people with Acquired Brain Injury in Northumberland, Tyne & Wear NHS Trust.

Table of Contents

Section Title Page Action Price
Understanding Behaviour in Dementia that Challenges, second edition: A Guide to Assessment and Treatment by Ian Andrew James and Louisa Jackman 3
Part I: Setting the Scene 9
1. Introduction 11
2. The Nature of Dementia 17
3. An Introduction to Behaviours that Challenge and Their Causes 30
Part II: Clinical Interventions for Behaviours that Challenge 53
4. Clinical Approaches to Behaviours that Challenge 55
5. Pharmacological Approaches 60
6. Screening for Health Conditions Associated with Confusion and 73
7. Communication and Interaction Training (CAIT) Programme for Carers 86
8. The Use of Protocol Intervention in the Treatment of Behaviours that Challenge 106
9. Psychological and Other Non-Pharmacological Approaches 125
The Newcastle 10. Model 148
11. Case Studies 168
Service 12. Development 203
Part III: Challenging Topics in Dementia Care 215
13. Racism in Care Settings 217
14. The Use of Physical Restraint to Deliver Essential Personal C 233
15. The Use of Dolls in Dementia Care 248
16. Therapeutic Lying 260
17. Behaviours that Challenge at the End of Life 280
References (for the whole book) 293
Subject Index 310
Author Index 315
Figures 6
Figure 2.1 Profile of the dementias and their percentage frequencies 18
Figure 3.1 Iceberg Analogy 36
Figure 3.2 CBT cycle 44
Figure 3.3 Biopsychosocial formulation of John 46
Figure 3.4 John and caregivers – CBT conceptualisation of a dysfunctional interaction 47
Figure 4.1 Treatment approaches for BtC 55
Figure 4.2 The DCP Stepped-Care Model for BtC (Brechin et al., 2013) 57
Figure 4.3 Structure of clinical chapters based on the DCP framework 59
Figure 5.1 Risk profile of antipsychotics 66
Figure 6.1 Systems of the body coordinated by the brain 75
Figure 7.1 Wheel of Communication 89
Figure 7.2 Mapping the emotional interactions between Tom and Helen 96
Figure 8.1 The DCM cycle 122
Figure 10.1 Overview of the NCBT’s formulation 156
Figure 10.2 Example of a behavioural chart incorporating an \nABC analysis together with elements of the Newcastle approach 157
Figure 10.3 NPI results for NCBT audit 162
Figure 11.1 Gordon’s formulation sheet 171
Figure 11.2 Mapping the emotional interactions between Tom and Helen 175
Figure 11.3 Helen’s formulation sheet 176
Figure 11.4 Typical example of a negative sequence occurring prior to the intervention 180
Figure 11.5 Cathy’s Newcastle Needs Checklist 181
Figure 11.6 Cathy’s formulation 183
Figure 11.7 Charlie’s ABC chart 186
Figure 11.8 Charlie’s formulation 188
Figure 11.9 John’s formulation (continues) 195
Figure 13.1 Possible relationships in which racism may occur 218
Figure 13.2 Decision-tree for dealing with racial abuse from PWD 228
Figure 15.1 Needs fulfilled through the use of dolls (Fraser and James, 2008) 250
Figure 16.1 Mike’s timeline 270
Figure 16.2 Interlocking spheres of communication – entering Mike’s reality 272
Figure 16.3 The truth versus well-being graph (Caiazza and James, 2016) 277
Tables 6
Table 1.1 Estimated prevalence of dementia by world regions (2015 and 2050) 12
Table 1.2 Seven of the 20 WHO dementia research priorities (WHO Research Prioritization Exercise, World Alzheimer Report (ADI, 2016) 15
Table 2.1 Classification system of stages, illustrating the Allen model (Allen et al., 2007) and the Pool Activity Levels (Pool, 2012) 21
Table 3.1 List of common BtC 32
Table 3.2 Classification of needs in dementia care 42
Table 3.3 Table differentiating needs from ‘wishes and demands’ 43
Table 5.1 List of medications used to treat BtC 63
Table 5.2 The top five psychotropics chosen for Bishara’s three vignettes (Bishara et al., 2009) 70
Table 6.1 Common health conditions associated with BtC 74
Table 6.2 Most common causes of delirium 80
Table 6.3 Table of family caregiver questionnaires 83
Table 7.1 Customer care skills taught in Module 1 89
Table 7.2 Articulation of skills pre and post CAIT 91
Table 7.3 Basic needs list 94
Table 7.4 Cognitive themes and their relationships to emotional appearance 95
Table 8.1 The Needs Hierarchy process 109
Table 8.2 Trying to meet Roger’s needs 110
Table 8.3 RAM framework 111
Table 8.4 Response plan for RAM 112
Table 8.5 Response Plan for Joan 115
Table 8.6 Decision-tree matrix for physical non-aggressive behaviours (Cohen-Mansfield, 2000) 117
Table 8.7 Newcastle Challenging Behaviour Checklist (example version) 118
Table 9.1 Summary of the WHELD findings (Ballard et al., 2016) 127
Table 9.2 Non-pharmacological approaches in dementia and their evidence base 128
Table 10.1 LCAPS guidelines for working with care staff 149
Table 10.2 The ‘5 plus 9’ NCBT treatment model 151
Table 10.3 Some of the skills required to work with staff in care facilities 154
Table 10.4 Illustration of how the emotional presentation of the person can help identify need and develop the intervention 161
Table 10.5 Reasons for not employing the full protocol 164
Table 11.3 Summary of NCBT interventions (Mackin, 2009) 200
Table 12.1 Skills required in working with staff and families with BtC in dementia 209
Table 13.1 Billing and Moos’ grid and examples of immediate (IM) and long-term (LT) coping strategies that were used by care workers (Milburn and Stephenson, 2012) 225
Table 15.1 Guidelines for the use of dolls in dementia care settings (Mackenzie, Wood-Mitchell and James, 2007) 258
Table 16.1 Terms typically used in the taxonomies of untruths 262
Table 16.2 Types of lies told by carers (Mills et al., in press) 265
Table 16.3 The prevalence of the time‑shifting phenomenon in care homes 267
Table 17.1 Psychological needs of people with dementia and aspects of palliative care (from Hughes 2006, p.8) 282
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