Abstract

Drawing on the author's first-hand experiences with families, this book provides crucial, accessible information and answers the difficult questions that often arise when a family member with an intellectual disability is diagnosed with dementia.

Linking directly to policy and practice in both dementia and intellectual disability care, this book takes an outcome-focussed approach to support short, medium and long-term planning. With a particular emphasis on communication, the author seeks to ensure that families and organisations are able to converse effectively about a relative's health and care. The book looks at how to recognise when changes in the health of a relative with an intellectual disability could indicate the onset of dementia, as well as addressing common concerns surrounding living situations, medication and care plans. Each chapter is structured to identify strategies for support whilst working towards outcomes identified by families as dementia progresses.

Karen Watchman is Senior Lecturer in Ageing, Frailty and Dementia at the University of Stirling, Scotland, UK. She has worked in intellectual disability, ageing and dementia care for over twenty years in both practice and academic settings. Making research accessible has always been a core part of Karen's work and in addition to research and teaching activities, she regularly delivers training and lectures on this topic in the UK and internationally. She lives in Clackmannanshire, Scotland.

[...] books like this and the information they contain are crucial. [...] It is essential that we raise awareness of the potential links between dementia and learning disabilities so that people and their families get the information and support they need. This book is an excellent example of how to do this.
Laura Finnan-Cowan, Self-Directed Support Manager, Dementia in Scotland Winter 2017 issue
A very helpful read for family and carers of those with Intellectual Disabilities facing a possible diagnosis of dementia. Whilst alerting the reader to other health issues, it provides strategies for communicating, partnering and improving outcomes with an emphasis on quality of life. This is a guide that warrants more than one read.
Mary Hogan, Family Advocate, National Task Group for Intellectual Disabilities and Dementia Practices (NTG)