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Palliative Care for Children and Families

Palliative Care for Children and Families

Jayne Price | Patricia McNeilly

(2009)

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Book Details

Abstract

Providing an in-depth look at the issues surrounding the palliative care of children and their families, this innovative text considers children with both malignant and non-malignant conditions, and the specialist care required.

By addressing the complexities of providing palliative care to children, it aims to assist all those who work in this field to enhance their practice. Special features include:

■ broad research evidence, from national and international sources, on
which to base practice
■ absorbing activities to support learning and help build knowledge in
a meaningful way
■ interprofessional perspectives from the whole palliative care team

The contributors to the book are drawn from both education and practice across a range of disciplines. The result is a genuinely engaging, interdisciplinary text that is essential reading for students and professionals aiming to deliver quality palliative care in partnership with children and their families.


Written from an interdisciplinary perspective and combining theory, practice and case examples, this book gives a helpful insight into the difficult job of caring for critically ill children
JAYNE PRICE is Senior Teaching Fellow at the School of Nursing and Midwifery, Queen's University Belfast, Northern Ireland
 
PATRICIA McNEILLY is Teaching Fellow at the School of Nursing and Midwifery, Queen's University Belfast, Northern Ireland.
 
Jayne and Patricia have both worked extensively in practice with children requiring palliative care and with their families; Jayne caring for children with malignancy and Patricia caring for children with other life-limiting conditions. They strive to improve care for children and families through education and research and have published widely within this area of practice
'...this comprehensive new book is timely and appropriate.' - Nursing Standard
 
'...students and professionals working with children and their families will find [this book] essential reading...Palliative Care for Children and Families helps us to discover and re-discover some of the keys issues central to our work and encourages us to deliver quality palliative care in collaboration with our patients and their families. - Sarah Popplestone-Helm, Head of Family Support Service, St. Richard's Hospice, Worcester, UK (IJPN review)

Table of Contents

Section Title Page Action Price
Cover Cover
Contents v
Foreword vii
Preface ix
Acknowledgements xi
Notes on the Contributors xiv
Chapter 1 Palliative Care for Children a Unique Way of Caring 1
Chapter 2 Interdisciplinary Working 18
Chapter 3 Communicating Effectively 38
Chapter 4 Ethical Issues 64
Chapter 5 Meeting the Spiritual Needs of Children and Families 88
Chapter 6 Supporting Children and Families 107
Chapter 7 Reflection – Advancing Care and Practice 128
Chapter 8 Symptom Management 142
Chapter 9 Care of the Child at the End of Life 172
Chapter 10 Bereavement Care 192
Chapter 11 Future Directions for Children's Palliative Care 213
Index 229
A 229
B 229
C 229
D 230
E 230
F 231
G 231
H 231
I 231
J 231
K 231
L 231
M 232
N 232
O 232
P 232
Q 232
R 232
S 233
T 233
U 234
V 234
W 234