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When Young People with Intellectual Disabilities and Autism Hit Puberty

When Young People with Intellectual Disabilities and Autism Hit Puberty

Freddy Jackson Brown | Sarah Brown | Richard Hastings

(2016)

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Book Details

Abstract

Puberty, personal hygiene and sex can be difficult topics to broach with your child, especially when they have an intellectual disability or autism. The authors of this guide provide honest answers to challenging questions and provide solutions to the dilemmas that many parents face on a daily basis. Structured around issues related to puberty and emerging sexuality in children with disabilities or autism, such as physical changes, mood swings and sexual behaviour, the book presents case studies alongside practical guidance on how to overcome problems that commonly arise.

The book also explains laws relevant to disability and sexuality and suggests appropriate sex education programmes to meet the needs of differing degrees of disability.


We strongly recommend this book. Perfectly written and structured, it provides answers to important questions on real life issues that every parent, carer or practitioner might face today or in the future. A great read and an important addition to sex education literature.
Ioannis Voskopoulos and Labrini Ioannou, Psychologists
Puberty, sex and sexuality challenge many of us as we grow up, and then again as we parent our own children. Supporting a young person through puberty who has a diagnosis of intellectual disability or autism may add layers of complexity associated, for example, with learning and communication, increased vulnerability, the law and ethics. The authors of this book combine enormous wisdom with deep compassion and insight to deliver an uncompromising yet tactful and sensitively written guide presented in plain terms that almost everyone will understand.
Dr Sandy Toogood, Senior Lecturer, Bangor University
As a parent of a teenage boy with an intellectual disability, this book is a must read. It will be my go-to guide for many years to come. With refreshing 'frankness', the book answers questions that parents and carers may have during their child's journey through adolescence.If you need any guidance along your journey, this is the book for you - a powerful dose of encouragement and motivation to 'keep going'.
Joanne Morris, parent

Sarah Brown is a clinical psychologist who specialises in supporting the psychological wellbeing and empowerment of children and adults with intellectual disabilities in the community. Sarah has worked with families and education staff in special schools to promote a social constructionist approach to sexuality, supporting children through everyday interactions and conversations as well as through specific educational programmes. She currently works for the NHS in South Wales with people who have intellectual disabilities.

Freddy Jackson Brown is a clinical psychologist who works in Bristol, supporting children and families with a range of developmental needs, including sexuality and relationships. He has researched mindfulness and acceptance based interventions that can be used in home, school and work settings. He has published over 20 research and professional articles in peer reviewed journals and books. Freddy provides teaching for postgraduate university training courses on child development, disability and communication.


Table of Contents

Section Title Page Action Price
When Young People with Intellectual Disabilities and Autism Hit Puberty by Freddy Jackson Brown and Sarah Brown 3
Foreword 9
1. The Importance of Sex Education 11
Sex education in the UK 13
Child development, sexuality and disability 16
Why is it difficult to talk about sex? 18
2. Why read this book? Healthy Development and Keeping Safe 21
Sexual abuse and ‘thinking the unthinkable’ 22
Principles for keeping safe 23
To talk or not to talk… 25
3. Biology, Bodies and Growing Up With Intellectual Disabilities 27
The biology of puberty 27
Puberty for children with intellectual disabilities 30
4. Bodies 33
4.1 \x07I’m worried about my child starting puberty. What can I do to help? 33
4.2 \x07How do I help my child to keep clean and wash properly? 38
4.3 \x07My child has a grown up body. Should I still be helping with intimate care? 43
4.4 \x07Acne, spots and skincare: Helping my child look after their skin 48
4.5 \x07My son’s body odour is getting stronger. What should I do? 52
4.6 \x07How do I help my child learn to use the toilet independently? 54
4.7 \x07What should I do when my son has erections when I change his continence pad? 59
4.8 \x07My daughter is growing pubic hair, what should I do? 63
4.9 \x07My son is growing facial hair, what should I do? 66
4.10 \x07How do I teach my daughter to use sanitary pads? 70
4.11 \x07What should I do about wet dreams, soiled pyjamas and bedding? 74
Resources 76
5. Behaviour 77
5.1 \x07My son keeps talking about women’s bodies. What can I do? 77
5.2 \x07My son keeps trying to masturbate, but doesn’t know how: What can I do? 80
5.3 \x07My daughter keeps masturbating in public – rubbing herself against things – what can I do? 85
5.4 \x07My child touches other people inappropriately, what can I do? 89
5.5 \x07My son likes dressing up in women’s clothes. What should I do? 92
5.6 \x07My child wants to use pornography. What should I do? 96
5.7 \x07My son thinks everyone on the Internet is his best friend. How do I keep him safe? 104
5.8 \x07My son is sexually interested in feet/nappies/phones, etc. What should I do? 107
5.9 \x07Sexting, nude selfies and social media: How do I keep my child safe? 112
5.10 \x07What issues might my child have around body image and physical differences? 115
Resources 120
6. Feelings 123
6.1 \x07I’m worried my child is vulnerable to abuse. What can I do? 123
6.2 \x07How do I help my child express their feelings? 127
6.3 \x07My daughter seems very moody, what can I do? 133
6.4 \x07Teenage emotional states – childhood to adulthood – what can I expect? 138
6.5 \x07My child wants a girlfriend/boyfriend, but I’m worried they’ll be rejected. How can I help? 141
Resources 146
7. Relationships 147
7.1 \x07How do I teach my child what makes a friend? 147
7.2 \x07My daughter’s got a boyfriend/girlfriend, what’s going on? 153
7.3 Will my child ever be able to get married? 160
7.4 \x07How much choice and control should I give my child? 164
Resources 169
8. Young People, Sex and the Law 171
8.1 \x07Will my son/daughter be legally allowed to have a sexual relationship at 16? 171
8.2 \x07What happens if my child exposes themselves or masturbates in public? 174
8.3 \x07Can I help my son/daughter access a disability sex worker? 174
8.4 \x07How do I stop my child from accessing illegal sites or doing anything illegal online? 176
8.5 \x07Can my daughter be given contraceptive advice without my knowledge? 177
9. Relationships and Sex Education 179
An RSE programme for young people with intellectual disabilities 179
References 191