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Optimal Care for Patients with Epilepsy: Practical Aspects, an Issue of Neurologic Clinics, E-Book

Optimal Care for Patients with Epilepsy: Practical Aspects, an Issue of Neurologic Clinics, E-Book

Steven C. Schachter

(2016)

Additional Information

Abstract

This common and very important disorder of Epilepsy is led by Dr. Steven Schachter in this issue of Neurologic Clinics. The majority of articles review methods for application of standards, guidelines, and consensus statement to clinical practice by Primary Care physicians and general Neurologists using validated and evidence-based tools such as screening instruments and algorithms for a number of critically important topics, ranging from initial evaluation to monitoring patients on treatment to counseling and educating patients on SUDEP and driving. Topics in this issue include: Guidelines and quality standards for adult epilepsy patients; Guidelines and quality standards in care of children with epilepsy; Initial evaluation of the patient with suspected epilepsy; Starting, choosing, changing, and discontinuing treatment; Methods for measuring seizure frequency and severity; Assessment of treatment side effects and quality of life; Screening for depression and anxiety; Counseling patients on driving and employment; Issues for women with epilepsy; Patient education (SUDEP - Sudden Unexpected Death in Epilepsy; Self-management; Adherence; Rescue medication); Optimizing the patient-physician therapeutic alliance.

Table of Contents

Section Title Page Action Price
Front Cover Cover
Optimal Care forPatients with Epilepsy:Practical Aspects i
Copyright\r ii
Contributors iii
CONSULTING EDITOR iii
EDITOR iii
AUTHORS iii
Contents vii
Preface: Practical Approaches to Providing Optimal Care to Patients with Epilepsy\r vii
Guidelines and Quality Standards for Adults with Epilepsy\r vii
Guidelines and Quality Standards in the Care of Children with Epilepsy\r vii
Initial Evaluation of the Patient with Suspected Epilepsy\r vii
Screening for Depression and Anxiety in Epilepsy\r vii
Starting, Choosing, Changing, and Discontinuing Drug Treatment for Epilepsy Patients\r viii
Methods for Measuring Seizure Frequency and Severity\r viii
Assessment of Treatment Side Effects and Quality of Life in People with Epilepsy\r viii
Issues for Women with Epilepsy\r ix
Counseling Epilepsy Patients on Driving and Employment\r ix
Patient Education: Identifying Risks and Self-Management Approaches for Adherence and Sudden Unexpected Death in Epilepsy\r ix
NEUROLOGIC CLINICS\r\r x
FORTHCOMING ISSUES x
August 2016 x
November 2016 x
February 2017 x
RECENT ISSUES x
February 2016 x
November 2015 x
August 2015 x
Preface Practical Approaches to Providing Optimal Care to Patients with Epilepsy\r xi
Guidelines and Quality Standards for Adults with Epilepsy 313
Key points 313
GUIDELINES FOR CLINICAL CARE 314
Clinically Focused Guidelines 314
Comprehensive Guidelines 315
QUALITY INDICATORS AND QUALITY MEASURES 319
HISTORY OF EPILEPSY QUALITY MEASURES 320
AMERICAN ACADEMY OF NEUROLOGY QUALITY MEASURE SETS 320
American Academy of Neurology 2009 Quality Measure Set 320
American Academy of Neurology 2014 Quality Measure Set 322
IMPLEMENTING HIGH-QUALITY CARE IN YOUR PRACTICE 322
REFERENCES 322
Guidelines and Quality Standards in the Care of Children with Epilepsy 327
Key points 327
INTRODUCTION 327
DRIVERS FOR GUIDELINE DEVELOPMENT IN THE UNITED KINGDOM 327
DEFINITIONS OF GUIDELINES 328
COMPONENTS OF A SYSTEMATICALLY DEVELOPED CLINICAL PRACTICE GUIDELINE 329
Scope 329
Stakeholder Involvement 329
Guideline Development 331
Evidence and Recommendations 331
Clarity of Presentation, Applicability, and Editorial Independence 331
WEAKNESSES OF THE EVIDENCE-BASED GUIDELINES APPROACH 332
THE ROLE OF QUALITATIVE LITERATURE: THE LOST TRIBE IN CLINICAL GUIDELINES? 332
GUIDELINE IMPLEMENTATION 333
Dissemination 334
Guideline Appraisal 334
Education and Training 335
Workforce Planning 335
Quality Standards 335
Audit and Benchmarking 335
Clinical Networks 335
SUMMARY 336
REFERENCES 336
Initial Evaluation of the Patient with Suspected Epilepsy 339
Key points 339
INTRODUCTION 339
IS IT EPILEPSY? 340
Definition of Epilepsy 340
When Can We Say Someone Has Epilepsy After a Single Seizure? 341
How Do You Diagnose Epilepsy? 341
How Do We Classify Seizures and Epilepsy Syndromes? 341
ROLE OF INVESTIGATIONS IN PATIENTS WITH SUSPECTED EPILEPSY 342
General Role of Investigations 342
Initial Assessment 345
Determining the Type of Seizure and Epilepsy 345
Guiding Therapy and Prognosis 346
PSYCHOLOGICAL AND COGNITIVE ASSESSMENT 347
Psychological Evaluation 347
Neurocognitive Assessment 347
ROLE OF EARLY REFERRAL TO SPECIALIZED CENTERS 347
SUMMARY 348
REFERENCES 348
Screening for Depression and Anxiety in Epilepsy 351
Key points 351
INTRODUCTION 351
DEFINITION, EPIDEMIOLOGY, AND IMPACT OF DEPRESSION AND ANXIETY IN EPILEPSY 352
MEASURING DEPRESSION AND ANXIETY 354
SCREENING 354
TOOLS TO SCREEN FOR DEPRESSION AND ANXIETY IN EPILEPSY 355
Structured Interviews 355
Composite International Diagnostic Interview 355
Mini-International Neuropsychiatric Interview 355
Semistructured Interviews 356
Structured Clinical Interview for DSM 356
Self-Report 356
Patient Health Questionnaire 356
Neurologic Disorders Depression Inventory for Epilepsy 357
Hospital Anxiety and Depression Scale 358
Generalized Anxiety Disorder-7 358
SELECTING THE APPROPRIATE TOOL 358
CONSIDERATIONS/KNOWLEDGE GAPS 359
SUMMARY 359
REFERENCES 360
Starting, Choosing, Changing, and Discontinuing Drug Treatment for Epilepsy Patients 363
Key points 363
WHY AND WHEN TO START THE FIRST ANTIEPILEPTIC DRUG? 364
Selecting the First Antiepileptic Drug 364
Treatment Effects of Antiepileptic Drugs in New-Onset Epilepsy 369
Tolerability and safety in new-onset epilepsy 372
Changing Antiepileptic Drugs Because of Poor Efficacy 372
Changing Antiepileptic Drugs Because of Poor Tolerability 374
Therapeutic monitoring 374
The Elderly 374
Stopping Antiepileptic Drug Treatment 374
SUMMARY AND LOOKING AHEAD 377
REFERENCES 378
Methods for Measuring Seizure Frequency and Severity 383
Key points 383
INTRODUCTION 383
SEIZURE SEVERITY SCALES 384
SEIZURE DIARIES 385
SHAKE DETECTORS 386
ELECTRODERMAL RESPONSE 387
ELECTROENCEPHALOGRAM MONITORING 388
REFERENCES 391
Assessment of Treatment Side Effects and Quality of Life in People with Epilepsy 395
Key points 395
INTRODUCTION 395
MAIN DETERMINANTS OF QUALITY OF LIFE IN EPILEPSY 396
Seizures 396
Psychiatric Comorbidities 396
Antiepileptic Drug Effects 397
Cognition 397
Sleep 397
Migraine 397
Social Impairments 398
METHODS OF ASSESSMENT OF QUALITY OF LIFE 398
ASSESSMENT OF MEDICATION EFFECTS 399
STRUCTURED ASSESSMENT OF SIDE EFFECTS 402
SELF-MANAGEMENT STRATEGIES TO IMPROVE QUALITY OF LIFE 406
SUMMARY 407
REFERENCES 407
Issues for Women with Epilepsy 411
Key points 411
INTRODUCTION 411
NEUROSTEROIDS 411
SEX STEROID HORMONE AXIS 412
CATAMENIAL EPILEPSY 412
Menstrual Cycle 412
Criteria for Diagnosis 413
Progesterone Therapy 413
Other Treatments 414
REPRODUCTIVE AND SEXUAL DYSFUNCTION 414
EFFECT OF ANTIEPILEPTIC DRUGS ON REPRODUCTIVE HORMONES 415
EFFECT OF REPRODUCTIVE HORMONES ON ANTIEPILEPTIC DRUGS 415
CONTRACEPTION 415
PREGNANCY 416
Risk of Congenital Malformations with Antiepileptic Drug Use 416
Antiepileptic Drug Monotherapies 416
Polytherapy 417
Cognitive and Behavioral Teratogenesis of Antiepileptic Drugs 418
Other Birth Outcomes 419
Folic Acid Use 419
Antiepileptic Drug Metabolism and Management During Pregnancy 419
BREASTFEEDING 420
MENOPAUSE 420
SUMMARY 421
REFERENCES 421
Counseling Epilepsy Patients on Driving and Employment 427
Key points 427
INTRODUCTION 427
DRIVING 428
Background 428
Driving Standards, Regulations, and Practices 429
Reporting Drivers with Epilepsy 431
Other Driving Issues in Epilepsy 431
COMMERCIAL DRIVING RULES 433
EMPLOYMENT 433
STANDARDS FOR EMPLOYMENT 435
SAFETY AND PREVENTION 436
SELECTED ISSUES IN THE EMPLOYMENT OF PEOPLE WITH EPILEPSY 437
EPILEPSY AND MILITARY SERVICE 437
EPILEPSY AND FEDERAL DISABILITY BENEFITS 437
REFERENCES 439
Patient Education 443
Key points 443
INTRODUCTION 443
GOALS OF PATIENT EDUCATION AND SELF-MANAGEMENT 444
CORE COMPONENTS FOR EPILEPSY EDUCATION 444
OUTCOMES OF EDUCATION AND SELF-MANAGEMENT INTERVENTIONS 445
LEARNING NEEDS AND PRIORITIES 445
Examples of Learning Needs 445
Setting Priorities 447
WHEN SHOULD EDUCATION BE PROVIDED? 447
MEDICATION ADHERENCE 449
Types of Interventions 449
Printed drug information 449
Structured educational programs 450
Self-administered questionnaire 450
Online educational self-management program 450
Seizure diaries and reminders 451
DISCUSSING SUDEP 451
PROVIDER PREFERENCES FOR SUDEP EDUCATION 452
PATIENT AND FAMILY PREFERENCES FOR SUDEP EDUCATION 453
GENERAL PRACTICES FOR SUDEP EDUCATION: THE WHEN, WHAT AND HOW 453
SUMMARY 454
REFERENCES 454
Index 457