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POTS and Other Acquired Dysautonomia in Children and Adolescents

POTS and Other Acquired Dysautonomia in Children and Adolescents

Kelly McCracken Barnhill | Fletcher Barnhill

(2016)

Additional Information

Abstract

This is an authoritative overview for anyone encountering Postural Orthostatic Tachycardia Syndrome (POTS) - a dysfunction of the autonomic nervous system resulting in diverse symptoms experienced in an upright position that are relieved by lying down - and other types of acquired dysautonomia. It provides essential information on the symptoms, diagnosis and treatment in children and young people.

Post-viral syndromes can be extremely difficult to manage and the average individual spends two to three years accessing appropriate diagnosis. This book provides necessary information for parents and healthcare professionals on identifying POTS and other post-viral dysautonomia, the most common triggers, appropriate intervention and successful multi-disciplinary management in both short and long term situations. It also includes helpful tips and coping strategies for managing the syndrome at home and in educational and clinical settings.


Kelly McCracken Barnhill has created an easy-to-understand handbook that is suitable as a reference resource for medical professionals, parents, and patients. She has been successful in demystifying this complex syndrome through the use of well-researched explanations of up-to-date testing and discussions of treatment options presented in the crucible of first hand patient accounts. The reader will find this an invaluable guide through the maze of dysautonomia.
Ainsley R Glenn, Founding Director, Dysautonomia Advocacy Foundation
Kelly McCracken Barnhill is Clinical Nutritionist and Director of Clinical Care at The Johnson Center for Child Health and Development. She has over a decade of experience working with nutrition in children with autism and related disorders and is Nutrition Director for the Autism Research Institute. Her son acquired post-viral dysautonomia at the age of 12. She is based in Austin, Texas.

Table of Contents

Section Title Page Action Price
POTS and Other Acquired Dysautonomia in Children and Adolescents by Kelly McCracken Barnhill 3
Medical Disclaimer 8
Foreword 9
Acknowledgments 12
Preface 14
1. Background and Emerging Diagnosis 19
2. Putting the Pieces Together 31
3. Accessing Appropriate Diagnosis in Dysautonomia 40
4. Appropriate Medical Treatment and Intervention for Dysautonomia 48
5. Recommended Dietary Strategies for Those with Dysautonomia 62
6. Nutritional Support and Supplementation for Those with Dysautonomia 80
7. Physical Therapy, Reconditioning, and Rehabilitation 87
8. Supportive Interventions 98
9. Fostering Coping Strategies and Stress Management Techniques for the Entire Family 114
10. School and Classroom Accommodations for Children with Dysautonomia 120
11. Recommendations and a Case Study 133
12. A First Person Account of Life with Dysautonomia 139
New thoughts and next steps 152
Resources 153
Bibliography 154
Subject Index 161
Author Index 166
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