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A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type)

A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type)

Isobel Knight | Alan Hakim

(2014)

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Book Details

Abstract

Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes:

changes in terminology
information on how osteopathy and nutrition can help
psychological approaches beyond CBT
how to deal with professionals
what to expect from support groups and rehabilitation programmes

This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.


Isobel Knight is a writer, researcher and periodic lecturer on Ehlers Danlos Syndrome (Hypermobility Type). She is also a practising Bowen Therapist. Isobel is the author of 'A Multidisciplinary Approach to Managing Ehlers-Danlos (Type III) - Hypermobility Syndrome' and she co-wrote, with John Wilks, 'Using the Bowen Technique to Address Complex and Common Conditions,' also published by Singing Dragon. She lives in South London.
Without having to worry about medical jargon, this is a book for anyone (layperson or professional) who wants to understand the personal impact of, and wants to be up to date with the clinical presentation and management of Ehlers-Danlos Syndrome - Hypermobility Type.
from the foreword by Dr Alan J. Hakim MA FRCP, Consultant Rheumatologist and Acute Physician, Barts Health NHS Trust and Board Non-executive, CWHHE Clinical Commissioning Collaborative, North West London