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Chronic Illness and Disability

Chronic Illness and Disability

Esther Chang | Amanda Johnson

(2014)

Additional Information

Book Details

Abstract

An updated edition of the essential nursing guide to a 21st-century ‘epidemic’.
Chronic diseases are the leading cause of death worldwide and, increasingly, nurses in Australia and New Zealand are caring for people with chronic disease and disability across a range of care settings.
This new edition of Chronic Illness and Disability: Principles for Nursing Practice is an indispensible tool, helping nursing students and health professionals acquire the knowledge and skills for competent quality care.
This highly regarded nursing text remains the only Australia/New Zealand nursing text to provide the holistic framework, principles of practice and models of care essential for nurses caring for individuals and families experiencing chronic illness and disability.
Chronic Illness and Disability: Principles for Nursing Practice 2e features new and updated content, including fully revised evidence-based practice and statistics aligned to core learning objectives.
Reflective questions in each chapter challenge nurses’ understanding of key nursing principles and practices, and new nursing case studies relate context to practice.
This Elsevier nursing book is written by a multidisciplinary team of over 50 expert clinicians and academics. It provides diverse, supportive evidence in the areas of major and common chronic illness and disability, including heart disease, stroke, cancer, asthma, diabetes, obesity, dementia, mental illness and palliative care.

  • - A new chapter promoting discussion of models of care
  • - New focus on chronic illness and disability self-management
  • - New focus on issues faced by families and carers in the adjustment and adaptation to living with chronic illness or disability
  • - Increased focus on the nurses’ role within the multidisciplinary team

Table of Contents

Section Title Page Action Price
Front cover cover
Chronic Illness and Disability i
Copyright page iv
Table of Contents v
Preface vii
Contributors viii
Reviewers xiii
1 Frameworks for chronic illness and disability 1
1 Chronic illness and disability: 1
Learning objectives 1
Key words 1
Introduction 1
The global perspective of chronic disease and disability 2
Chronicity and disability in the Australian and New Zealand context 3
Understanding the term ‘chronic disease’ 3
Understanding disability 4
Australian and New Zealand profiles of chronic disease 5
Indigenous populations 6
Risk factors in the development of chronic disease 8
Impact of chronic illness and disability 9
Models of care 10
Role of the interdisciplinary team 11
Challenges presented by chronic illnesses and disabilities 12
Principles of practice 12
Conclusion 13
Recommended reading 14
References 14
2 Role of the interdisciplinary/multidisciplinary team 16
Learning objectives 16
Key words 16
Introduction 16
References 17
Role of the nurse 18
Conclusion 19
References 19
Role of the dietitian 20
Nutritional standards of reference 21
The NUTTAB Australian Food Composition Table 21
Nutrient reference value 21
Australian Dietary Guidelines 21
Nutritional anthropometric reference values 21
Biochemical values 22
Conclusion 22
Recommended reading 22
References 22
Role of the medical practitioner 23
Conclusion 25
Recommended reading 25
References 26
Role of the occupational therapist 26
References 28
Role of the physiotherapist 29
Introduction 29
Physiotherapy profession 29
Physiotherapy practice 29
Conditions treated 30
Conclusion 31
Role of the speech pathologist 31
Recommended reading 33
References 33
Role of the social worker 34
Conclusion 36
Recommended reading 36
References 36
3 Models of care 38
Learning objectives 38
Key words 38
Introduction 38
Models of care for people with long-term conditions 39
The chronic care model 39
The expanded Chronic Care Model 39
Innovative care for chronic conditions model 40
The National Chronic Disease Strategy in Australia 40
An overview of the historical development of self-management programs 41
The self-management framework 42
Assessing readiness for change 42
Using motivational interviewing to facilitate behaviour change 43
Goal setting and action planning 44
Self-efficacy 45
Self-management support 47
Putting it all together 48
Conclusion 48
Recommended reading 54
References 54
4 Spirituality and the nurse: 60
Learning objectives 60
Key words 61
Introduction 61
Spirituality: an essential expression of humanity 62
Towards a fluid definition of spirituality: it is like ‘playing with water’ 62
Spirituality as connection 63
The role of religion in spirituality 63
The role of ritual in spirituality 64
Spiritual development 67
The mystery of suffering: the effect of chronic illness 68
Finding meaning in suffering 68
Holding hope 69
Families, friends and human connection 70
What does spirituality have to do with nursing? 71
Challenging the persisting biomedical model 71
Nursing the whole being 72
The nurse as a whole person: uncovering the personal spiritual essence 73
Know thyself! 73
Writing as a tool for reflection 73
Artwork as a tool for reflection 74
The wounded healer: nurses are human too! 74
Nourishing the spirit of the nurse 75
The nurse’s role in supporting people through illness, disability and suffering 77
Conclusion 78
Recommended reading 78
References 78
5 Psychosocial care 81
Learning objectives 81
Key words 81
Introduction 81
Chronic illness is a bit like cricket 82
Illness versus disease 82
A person in the context of their life 83
Diversity 84
Models 86
The Corbin and Strauss illness trajectory model 86
Paterson’s ‘shifting perspectives model’ 88
Quality of Life 88
Principles of care 89
Partnership 91
Compliance 91
Person-centredness 93
Collaborative decision making 93
Self-management 93
Holistic care 93
Empowerment 94
Conclusion 96
Recommended reading 97
References 98
6 Stigmatisation of people living with a chronic illness or disability 101
Learning objectives 101
Key words 101
Introduction 101
Nurses and stigma 102
Knowing ourselves 102
Deconstructing (identifying, naming and challenging) societal stigmatising processes 103
Principles of nursing practice in caring for people living with chronic illness and or/disability 108
Work with people in context 108
Recognise and value expertise and resourcefulness 109
Support rights to self-determination 110
Be aware of the potential for social isolation 110
Conclusion 111
Recommended reading 112
References 112
7 Sexuality in chronic illness and disability 115
Learning objectives 115
Key words 115
Introduction 115
Background 116
Defining the terms 117
The impact of chronic illness and/or disability on sexuality and sexual health 119
Biological impact 119
Psychological impact 120
Social impact 122
Implications for health practice 123
Conclusion 125
Recommended reading 129
References 129
8 Developmental and intellectual disability 133
Learning objectives 133
Key words 133
Introduction 133
The challenges of definition 134
Factors that contribute to the development of developmental and intellectual disability 136
Causes 136
Congenital 136
Prenatal 136
Perinatal 136
Postnatal 136
Prevention 136
Altered mobility and fatigue 137
Body image 138
Quality of life 140
Interventions to attain compliance 141
Family and carers 147
Education of the person and family 149
Conclusion 149
Recommended reading 149
References 150
9 Management of chronic pain 153
Learning objectives 153
Key words 153
Introduction 153
Chronic pain defined 154
The scope and impact of chronic pain 155
Understanding chronic pain secondary to disability 156
Towards a biopsychosocial model of chronic disability-related pain 158
Psychosocial factors and chronic pain 160
Stigma and chronic pain 161
Cultural determinants of the experience of chronic pain 164
Assessment of chronic pain 165
Pain rating scales 165
Quality 166
Onset and duration 167
Location 167
Exacerbating/relieving factors 167
Impact of pain 167
Pain diaries 169
Management of chronic pain 169
Treatment options 173
Analgesics 174
Non-drug interventions 174
Complementary therapies 175
Conclusion 177
Recommended reading 178
References 178
10 Rehabilitation for the individual and family 183
Learning objectives 183
Key words 183
Introduction 183
Rehabilitation as an intervention 184
International classification of functioning, disability and health 186
The use of goals 187
Long-term goals 187
Short-term goals 188
Nursing and rehabilitation 188
Brain injury — what is it? 191
Spinal cord injury — what is it? 192
Acute care — where rehabilitation begins 193
Pre-transfer education 195
Speciality inpatient rehabilitation 196
Establishing routines 197
Cuing systems 197
Goal setting 197
Timetabling 199
Nursing’s contribution to Matthew’s rehabilitation 200
Life after hospitalisation: rehabilitation begins in earnest 200
Recommended readings 205
References 205
11 Impact of obesity on chronic illness and disability 211
Learning objectives 211
Key words 211
Introduction 211
Incidence in Australia 212
Clinical measurements 212
Epidemiology and causes of obesity 212
The associated diseases of obesity 214
Urban planning and obesity 220
Mixed land use and density 223
Footpaths, cycle ways and facilities for physical activity 223
Street connectivity and design 224
Transport infrastructure and systems linking residential commercial and business areas 224
Physical environment and physical activity 224
Conclusion 227
Recommended reading 228
References 228
12 Palliation in chronic illness 232
Learning objectives 232
Key words 232
Introduction 232
An overview of historical developments 233
A Health promotion approach to palliative care 235
Levels of palliative care intervention 236
The primary carer 236
Primary care providers 237
The specialist palliative care team 237
Symptom control 238
Settings of care 239
The needs of older people at the end of life 239
Providing culturally appropriate palliative care for Indigenous people 240
Paediatric palliative care 241
End of life care 242
Bereavement and grief 242
Palliative nursing care response (Case Study 12.1) 243
Palliative care nursing response (Case Study 12.2) 245
Conclusion 248
Recommended readings 249
References 249
2 Principles of practice for supportive care 252
13 Schizophrenia 252
Learning objectives 252
Key words 252
Introduction 252
Description of the disorder 253
Symptoms of schizophrenia 253
The diagnosis of schizophrenia 253
What causes schizophrenia 254
The course of schizophrenia 254
The prodromal phase 254
The active phase 254
The residual phase 254
Schizophrenia and chronicity 255
Effect of schizophrenia on the activities of daily living 255
Stigma and schizophrenia 256
Image of self 256
Quality of life 257
Recovery 257
Principles of care 259
Medication 259
Psychosocial education 261
Family and carers 262
Implications for nursing 262
Conclusion 265
Recommended reading 265
Additional resources 266
References 266
14 Depression 269
Learning objectives 269
Key words 269
Introduction 269
The scope of the problem: the epidemiology of depression 270
Identifying the disability impacts of depression 272
Depression, the workplace and disability 272
Depression and medical illness 272
Clinical features of depression and assessment approaches 273
Depression: chronicity and recurrence 274
Dysthymic disorder (or dysthymia) 275
Treatment resistance 275
Chronic depression 275
recurrence and inter-episode functioning 275
Mapping the terrain: some issues in subtyping and classifying depressive disorders 277
The complex and multi-stranded causes of depression 279
Biological factors 279
Genetics: the role of heredity in depression 279
Neurotransmission 279
Psychological and psychosocial factors 280
Psychosocial stress and life events 280
Personality factors 280
Approaches to the treatment and management of depression 280
‘Biological’ approaches 280
Medication 280
Electroconvulsive therapy 282
St John’s Wort 282
Omega-3 fatty acids 282
Psychotherapeutic approaches 285
Cognitive behaviour therapy 285
Interpersonal therapy 285
Principles of nursing care 285
Rapport and meaning 285
Providing education 285
Ongoing assessment 286
Depressed thinking 286
Promoting sleep 286
Promoting activity and exercise 287
Withdrawn behaviour 287
Suicidality 288
Self-soothing and pleasant events 289
Conclusion 289
Recommended reading 289
References 289
15 Advanced dementia 294
Learning objectives 294
Key words 294
Introduction 294
Adopting a holistic approach 295
Advanced dementia and the experience of pain 297
Assessing pain in people with advanced dementia 300
Potential behavioural indicators of pain 301
Tools for assessment of pain for advanced dementia 302
Systematic approach to assessment of pain 303
Applying a systematic approach to the assessment of pain 303
Principles of communication with family carers 305
Potential impact on family carers 305
Assessment of family carers 305
Interventions to assist family carers 306
The family carer role in planning care for the person with dementia 307
Conclusion 308
Recommended reading 308
References 309
16 Stroke (cerebrovascular accident) 314
Learning objectives 314
Key words 314
Introduction 314
Stroke 315
Risk factors and primary prevention 315
Social factors 315
Age (the elderly) 316
Ethnicity 316
Heredity 316
Sex 316
Transient ischaemic attack 316
High blood pressure 317
High blood cholesterol 317
Carotid stenosis 317
Atrial fibrillation 317
Diabetes 317
Tobacco smoking 317
Alcohol consumption 318
Obesity 318
Other factors 318
Stroke prevention clinics 318
Pre-hospital care 318
Signs and symptoms of stroke 318
Diagnosis 319
Types of stroke 320
Ischaemic stroke 320
Haemorrhagic stroke 320
Acute stroke care 321
Ischaemic stroke care 321
Secondary prevention 322
Haemorrhagic stroke care 322
Rehabilitation 322
Conclusion 325
Recommended reading 326
References 326
17 Parkinson’s disease, multiple sclerosis and motor neuron disease 329
Learning objectives 329
Key words 329
Introduction 329
Parkinson’s disease 330
Altered mobility and fatigue 333
Body image 334
Quality of life 334
Family and carers 335
Multiple sclerosis 335
Altered mobility and fatigue 338
Body image 338
Quality of life 339
Family and carers 340
Motor neuron disease 340
Altered mobility and fatigue 343
Body image 344
Quality of life 344
Family and carers 345
Education for the person and family living with PD, MS or MND 345
Conclusion 346
Recommended reading 347
References 347
18 Chronic asthma 351
Learning objectives 351
Key words 351
Introduction 351
Behaviours that contribute to the development of the condition 353
Pathophysiology 353
Allergen triggers 354
Allergen avoidance 354
Altered mobility and fatigue — relationship to activities of daily living 355
Body image — impact on the person and their carers 356
Issues of quality of life in relation to their condition 356
Interventions to attain compliance 357
Asthma action plans 357
Asthma control 357
Spirometry and peak expiratory flow measurements 360
Family and carers 363
Nursing management 363
Education for the person and family 363
Self-management interventions 363
Conclusion 368
Recommended reading 369
References 369
19 Chronic obstructive pulmonary disease 371
Learning objectives 371
Key words 371
Introduction 371
What is COPD? 372
How is COPD related to asthma and other lung function diseases? 372
How common is COPD? 373
Epidemiology of COPD 374
Effects of COPD on physical health 376
Pathophysiology of breathlessness 377
Altered mobility and fatigue 378
Measurement of physical health 378
Effects of COPD on mental health and quality of life 379
Quality of life 379
Adjustment to illness 380
Impact on the person and their family 381
Depression and anxiety 381
Management of COPD 382
Management of psychological symptoms 382
Education for the person with COPD and their family — pulmonary rehabilitation 383
Other issues to consider: palliative care for COPD 384
Nursing principles and interventions 385
Principles of nursing practice 386
Conclusion 386
Recommended reading 388
References 388
20 Coronary heart disease 393
Learning objectives 393
Key words 393
Introduction 393
Risk factors and behaviours that contribute to the development of CHD 395
Absolute risk assessment 397
Cardiac rehabilitation 397
Patient education: understanding the disease 398
Smoking 399
Nutrition 399
Alcohol 400
Physical activity 400
Healthy weight 401
Lipids 401
Blood pressure 401
Diabetes 402
Compliance 402
Psychosocial assessment 403
Depression and anxiety 403
Social isolation and lack of social support 404
Conclusion 405
Recommended reading 406
References 406
21 Chronic heart failure 409
Learning objectives 409
Key words 409
Introduction 409
Definition of chronic heart failure 411
Causes of chronic heart failure 411
Systolic heart failure: impaired ventricular contraction 411
Heart failure with preserved ejection fraction: impaired ventricular relaxation 411
Deleterious compensatory mechanisms in chronic heart failure 412
Renin-angiotensin-aldosterone system 412
Sympathetic nervous system response 412
Signs and symptoms of chronic heart failure 412
Diagnosis of chronic heart failure 413
Physical examination 413
Electrocardiogram 414
Chest x-ray 414
Echocardiogram 415
Management of Chronic Heart Failure 415
Pharmacological therapy 415
Device therapy 415
Surgical therapy 416
Team management approach to chronic heart failure management 416
Managing acute decompensated heart failure 417
Strategies to manage chronic heart failure on a daily basis across the disease continuum 417
Evidence-based treatment gap 418
Palliative and supportive strategies in chronic heart failure 418
Conclusion 419
Recommended reading 421
References 421
22 Chronic kidney disease 424
Learning objectives 424
Key words 424
Introduction 424
Understanding chronic kidney disease 425
CKD and accelerated cardiovascular disease 427
Screening for Chronic Kidney Disease 428
Delaying progression 429
Preventing complications 430
Treating complications 430
The patient with end-stage kidney disease 431
Altered mobility and fatigue 431
Body image 432
Quality of life 433
Supporting effective self-management in Chronic Kidney Disease 435
Family and carers 437
Education for the person and family 438
Conclusion 440
Recommended reading 440
References 441
23 Chronic diseases of the bowel 445
Learning objectives 445
Key words 445
Introduction 445
Inflammatory bowel disease: two distinctive disorders 447
Manifestations 448
Demographics and aetiology 449
Non-modifiable risk factors 449
Modifiable risk factors 449
Treatment 450
Non-pharmacological 450
Pharmacological treatment 451
Surgery 452
Irritable bowel syndrome 452
Treatment 453
Non-pharmacological 453
Pharmacological 453
Chronic diseases of the bowel: nursing implications 453
Behaviours that contribute to the development of the condition or sustain remission 454
Altered mobility, body image and fatigue 455
Interventions to attain compliance 456
Education and family and carer support 457
Quality of life 458
Conclusion 459
Recommended reading 461
Related websites 461
Associations 461
Self-help and support groups 461
Clinical trials 461
Commercial sites 461
References 462
24 Non-melanocytic skin cancers and melanoma 465
Learning objectives 465
Key words 465
Introduction 465
Behaviours that contribute to the development of skin cancer 466
Basal cell carcinoma and squamous cell carcinoma 466
Presentation and diagnosis of non-melanocytic skin cancers 467
Medical treatment 467
Malignant melanoma 468
Presentation and diagnosis of melanoma 468
Medical treatment 469
Marjolin’s ulcer 469
Nursing management 471
Wound management 471
Alterations in body image 472
Discomfort or wound pain 472
Bleeding 473
Infection 473
Increased exudate 473
Malodour 474
Education for the person, family and community 474
Conclusion 475
Recommended reading 475
References 476
25 Ageing and disability (osteoarthritis and osteoporosis) 478
Learning objectives 478
Key words 478
Introduction 478
Osteoarthritis 479
Behaviours that contribute to the development of osteoarthritis 479
Altered mobility and fatigue 480
Key points 481
Body image 481
Quality of life 482
Key points 483
Interventions to attain self-management 483
Key points 484
Family and carers 484
Education for the person and family 485
Osteoporosis 485
Behaviours that contribute to the development of osteoporosis 485
Key points 486
Altered mobility and fatigue 487
Body image 487
Quality of life 488
Interventions to attain self-management 488
Education for the person and family 488
Conclusion 489
Recommended reading 489
References 490
26 Principles of practice for supportive care: 492
Learning objectives 492
Key words 492
Glossary 492
Introduction 493
Diagnosis of diabetes 494
Type 1 diabetes 494
Type 2 diabetes 494
Diagnostic criteria 495
Type 1 diabetes 495
Type 2 diabetes 495
Interventions 496
Medication management 496
Type 1 diabetes 496
Background or long-acting insulin 498
Rapid-acting insulin 498
Continuous subcutaneous infusion of insulin (CSII) 498
Type 2 diabetes 499
Insulin-sensitising drugs 499
Insulin-stimulating drugs 499
Drugs that focus on the incretin system 499
Insulin therapy 502
Dietary interventions 502
Type 1 diabetes 502
Type 2 diabetes 503
Exercise 504
Complications of diabetes 504
Acute complications 504
Hypoglycaemia 504
Long-term complications 505
Self-management 506
Patient education 506
Self-blood glucose monitoring 507
Conclusion 509
Recommended reading 510
Useful website 511
References 511
27 HIV/AIDS 514
Learning objectives 514
Key words 514
Introduction 514
Background 515
Statistics, transmission and prevention 516
Statistics 516
Transmission 516
Prevention 517
Testing for HIV 518
Progression and treatment 518
Progression 518
Treatments 519
Fatigue 520
Activity intolerance 521
Weight loss 521
Coping with loss 522
Sexually transmitted infections 523
Substance use 523
Medical appointments 523
Medical presentation 524
Pregnancy testing 524
Partner education 524
Testing of children 524
Social factors 525
Interventions 525
Opportunistic infections 525
Collaboration with allied health professionals 526
Family and carers 527
Conclusion 528
Recommended reading 528
Useful websites 528
References 529
28 Cancer 531
Learning objectives 531
Key words 531
Introduction 531
Reducing risk and detecting cancer early 532
Behaviours which contribute to the development of the cancer 532
Participation in cancer screening programs 532
Ensuring best possible treatment and support during and after active treatment 535
Issues of quality of life in relation to cancer 535
Nursing responses to key quality of life concerns for people affected by cancer 536
Altered mobility and fatigue — relationship to activities of daily living 536
Body image — impact for the person and their family carers 539
Family and carers of people affected by cancer 540
Education and support for the person and family affected by cancer 540
Conclusion 542
Recommended readings 544
References 544
Index 546
A 546
B 548
C 548
D 553
E 556
F 556
G 557
H 557
I 558
K 559
L 559
M 560
N 561
O 562
P 563
Q 565
R 565
S 566
T 569
U 570
V 570
W 570